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The PXE Files Magazine

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3rd December: Special PiXiE Greetings at Christmas!

A happy Christmas to all our members and friends!
PXE Christmas card

16th May: Recommended Annual Health Checks for PXE patients

  • Keep normal body weight
  • No BMI > 26 for male and > 25 for female
  • Do regular exercise
  • Eat healthily
  • Annual lipid profile:
    • Cholesterol (HDL, LDL, VLDL, Chylomicrons)
    • Triglycerid
    • Lipoprotein a [Lp (a)]
    • Homocystein
    • C-reactive Protein
  • Annual echocardiography and stress test
  • Two annual 24-hour blood pressure monitorings
  • Exclusion of diabetes mellitus as additional risk factor
  • Annual visit to Eye Specialist (depending on whether you have any vision loss)

    • 18th December: Easy Fundraising



    We have teamed up with easyfundraising who provide a great service where you can raise funds - and also save money - when you shop online. www.easyfundraising.org.uk offers access to an online directory listing over 150 of the UK's biggest and best-known high street retailers, but with a difference. Simply use the links provided on their website when you shop and up to 15% of your purchase price will be donated back to PiXiE, FREE of charge.
    Many retailers now give special offers and discounts - some exclusive to easyfundraising members when you shop online using their websites, so it won't cost you a penny extra and you can even save money.
    All you need to do is visit www.easyfundraising.org.uk and register selecting PiXiE. Why not raise funds for us whilst making purchases you would make anyway?


The Pseudoxanthoma Elasticum Support Group is a registered charity: No 1055465