To view the magazine
you must have Adobe Acrobat Reader installed. If you have, just click
on image.
3rd December: Special
PiXiE Greetings at Christmas!
A happy Christmas to all our members and friends!
16th May:
Recommended Annual Health Checks for PXE patients
Keep normal body weight
No BMI > 26 for male and > 25 for female
Do regular exercise
Eat healthily
Annual lipid profile:
Cholesterol (HDL, LDL, VLDL, Chylomicrons)
Triglycerid
Lipoprotein a [Lp (a)]
Homocystein
C-reactive Protein
Annual echocardiography and stress test
Two annual 24-hour blood pressure monitorings
Exclusion of diabetes mellitus as additional risk factor
Annual visit to Eye Specialist (depending on whether you have any vision loss)
18th December:
Easy Fundraising
We have teamed up with easyfundraising who provide a great service where you can raise funds -
and also save money - when you shop online. www.easyfundraising.org.uk
offers access to an
online directory listing over 150 of the UK's biggest and best-known high street retailers, but
with a difference. Simply use the links provided on their website when you shop and up to 15%
of your purchase price will be donated back to PiXiE, FREE of charge.
Many retailers now give special offers and discounts - some exclusive to easyfundraising members
when you shop online using their websites, so it won't cost you a penny extra and you can even save money.
All you need to do is visit www.easyfundraising.org.uk and register selecting PiXiE. Why not raise funds for
us whilst making purchases you would make anyway?
The Pseudoxanthoma
Elasticum Support Group is a registered charity: No 1055465