www.napxe.org
Website of the National Association for PXE, based in St. Louis, Missouri, USA.

Recessive PXE
The relevant PXE pages from the OMIM (Online Mendelian Inheritance in Man) database of human genes and genetic disorders, put together by Dr Victor McKusick at Johns Hopkins with the National Center for Biotechnology Information.

Macular Disease Society
The Macular Disease Society is a self-help society for those suffering from any of the eye conditions encompassed by the overall name of Macular Disease.

Medic Alert
Home of the bracelets that some PXE sufferers choose to wear to alert others of their medical condition.

The Genetic Interest Group
Much-needed support for those affected by genetic conditions.

If you know of any other useful information on the Web, please let us know so we can include links here.