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Supporting
sufferers of Pseudoxanthoma Elasticum
The Pseudoxanthoma
Elasticum (PXE) Support Group (PiXiE) is a non-profit making charitable
trust, founded in 1984 by Elspeth Lax and run entirely by unpaid volunteers.
You can read about how
PiXiE was founded and gain some insight into how it has grown.
The PXE support group
aims to:
- help, encourage
and assist those with PXE and their family members
- heighten the awareness
of PXE amongst the medical community, support services and the general
public
- link members with
each other for mutual support and exchange of ideas
- provide information
on the various aspects of PXE
- provide copies
of our newsletter, "PiXiE", containing medical articles and
letters from members
- hold meetings to
which all members, their families and friends are invited.
You can join
PiXiE by returning the online Membership
Application form and a remittance of £10 by post.
If you would
like further information on PXE and the support group or would like
to make a donation towards running costs, please contact:
Elspeth Lax,
15 Mead Close, Marlow, Bucks, SL7 1HR, UK
tel 01628 476687 (international +44 1628 476687)
email pxeeurope@aol.com
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